Showing posts with label ALI. Show all posts
Showing posts with label ALI. Show all posts

Monday, April 16, 2012

Punched

I remember the first time I saw Gattaca. Being your average science geek, I was immediately engrossed by the story line, following the hero as he fought to achieve his dreams in a society that dictated class based on one's genetics. What made Gattaca particularly provocative was the idea that one could use preimplantation genetic diagnosis (PGD) to select embryos with desirable traits. The movie goes on to show class separation for these designer babies from those conceived through traditional means, painting PGD as a tool for discrimination and portraying reproductive technologies in less than desirable light.

It's no secret that reproductive technologies are still viewed in a negative light. I've written before about the bad rap IVF gets from those who have not been touched by infertility. PGD is an even hotter issue, thanks to movies like Gattaca. The idea that one can create "designer babies" sends your average individual off on a tirade about the evils of "playing God." Rarely do the look at the actually uses of PGD, such as screen for embryos that are chromosomally abnormal and helping eliminate detrimental diseases such as cystic fibrosis. Mainly because many are ill-informed.

This morning, I received the following email from the WA Chapter for the Association for Women in Science (AWIS):
Association for Women in Science (AWIS) Invites you to
Join us for a Discussion about Bioethics, this Wednesday, April 18th.
Bioethics Discussion on Human Genetic Engineering: Why I Love Designer Babies?
Featured Speaker:Kathyrn Hinsch - Founder and President of Women's Bioethics Project
I felt like I had been punched.

A quick Google search on Ms. Hinsch reveals a biography of someone who has what I consider a superficial view on the subject matter. Add in flyer attached to this email, where she uses Gautam Naik's Wall Street Journal article to launch into her dissection of the "designer babies" topic and I found myself growing angrier by the minute.

The more I read, the more it became clear that this women has no idea the horrors of infertility. I have no idea if Ms. Hinsch has children, but I suspect that her ability to conceive and bear them has never been called into question. Add in the fact that her flyer does nothing to talk about PGDs current uses and we now have a discussion that is ripe of misinterpretation.

I feel Ms. Hinsch is adding yet another layer of discrimination against the ALI community. That her discussion on Wednesday will result in a one-sided argument against not only PGD, but fertility treatments in general. That anyone who pursues IVF will be villainized and considered "selfish." All of this coming from a majority who will not be faced with traumas caused by infertility and loss. And I'm not happy about it.

Tonight, I'm trying to figure out what to do. Part of me wants to attend this discussion solely to punch as many holes in Ms. Hinsch argument against PGD. But the other part of me feels that this may be exactly what she's hoping for. After all, everyone remembers a heated discussion. In addition, I'm still in the process of healing. As wimpy as that sounds, I know I'm not at my best, meaning it's quite possible that I'll do more harm than good. In addition, it's entirely possible that I'm making a mountain out of a mole-hill.

In short, I'm asking for help. I need some advice on how to proceed. What would you do?

Monday, December 5, 2011

Award encouraging TMI

Hooray for another award!  This one from Her Royal Fabulousness at Waiting for Little Feet, promoting community and encouraging oversharing.   If you haven't had a chance, I highly recommend you check out her newly redesigned blog about her infertility journey.


Similar to the Liebster Blog Award, certain rules also apply in receiving this award:
  • Thank the person who passed the award on to you. (Thanks Her Royal Fabulousness!)
  • List 7 things that people may not know about you.
  • Pass the award to 15 other bloggers and don't forget to notify them as well.  Feel free to ignore my nomination if you received it from someone else
1) I hate crowds.  This makes activities like shopping, concerts, airports, etc a bit difficult.  Having a plan of attack when needing to be in crowded areas helps a lot and so do various forms of distraction, but I have my limits.

2) I love water.  Particularly large bodies of it.  Some of my best nights of sleep involved being near rivers, lakes and the ocean.  I love how free my body feels when I'm floating, the energy of water rushing past me, how warm and wonderful the liquid feels as it surrounds me.  In my next life, I'm coming back as a mermaid.

3) As much as I hate to admit it, I'm hopeless addicted to Disney.  I cried like a baby at the beginning of "Up," hosted a girls-night-out centering around "Finding Nemo," watched the "Lion King" more than I care to admit, you get the picture.  We even spent part of our honeymoon at Disneyland.  Corny, yes. Totally worth it, though.

4) I'm the opposite of a rapid adopter.  Smart phones scare me.  Just starting a blog was a huge deal.  Universe help me if Grey dies before I do.

5) Some of my happiest memories involve sinking my hands into soft, black soil and working in fields in the Midwest.  Despite this, I've managed to kill most of my plants.

6) I dream in color.

7) I've never been off the North American continent.  No joke.  Everyone else in my family has traveled to Europe, Asia, even the Middle East.  Your's truly really wants to travel.  Or at least live abroad.  Trying to convince Grey that this is a great option since doing what everyone else does doesn't seem to be working for us.

Now the blogs;

Brooke at Becoming Parents
Trisha at The Elusive Second Line
Will Carry On
Kayla at Life is Simple, It's Just Not Easy
Chanel at Just waiting for my turn
Hope Delayed
Jessica at Our roller coaster through IVF . . .
Amanda at My life in a nut shell
Gee at Geebaby
Rebecca at Life of an Army Wife
Alissa at Miss Conception
Belle at Scrambled Eggs
Rachel at Eggs in a Row
Rain Child at Weathering the Storm . . . 
Sara at A Mommy's Thoughts

Have fun, all!!

Thursday, November 24, 2011

What I'm thankful for . . .

I'm thankful for having a warm, dry home.

I'm thankful for being employed, especially in a position that I love.

I'm thankful for my general health and that I'm healthy enough to be able to live life to the fullest.

I'm thankful for friends who have supported us on this journey.  They've helped me through some dark hours.

I'm thankful for my family.  Though small, there is a lot of love and laughter.

I'm thankful that 8 1/2 years ago, I found my partner in life.  Grey, I can't imagine my life without you.  You're my other-self.

Finally, I'm thankful for this community; for all you've taught me and all the support.  Though I'm only beginning to know all of you, your words have helped me as I prepare for this cycle.
 
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